My Survivor Village
A virtual cancer community dedicated to helping women thrive.
Resources
LATINA CANCER ORGANIZATIONS
ALAS-WINGS, a 501(c)(3): non-for profit organization, is dedicated to empowering Hispanic/Latina women about breast cancer awareness through comprehensive education and support for all women faced with breast cancer diagnosis and survivorship. http://alas-wings.org
Día de la Mujer Latina: The mission of Día de la Mujer Latina is to promote healthy behaviors within the underserved Latino community by providing a culturally and linguistically proficient education, facilitating early detection screening, culturally preventative care interventions; promoting wellness with resource information, Promotores/Community Health Workers training and Patient Navigation for follow-up services. http://diadelamujerlatina.org
Redes En Acción: The National Latino Cancer Research Network is a network of more than 2,000 community leaders, researchers, governmental officials and public advocates from across the nation dedicated to fighting cancer among Latinos through research, training, and awareness. https://www.redesenaccion.org/
Círculo de Vida: In the field of cancer, many of the inroads to increasing language-specific psychosocial support in the San Francisco Bay Area can be directly attributed to Círculo de Vida Cancer Support and Resource Center. Founded in 1992, Círculo de Vida is the first successful Spanish-language support group program in the greater Bay Area and has since been a model for groups in five Bay Area cities. http://www.circulodevida.org
Latina Breast Cancer Agency: Olivia Fe’ founded the Latina Breast Cancer Agency (LBCA) in April 2002 in response to the growing need for breast and cervical cancer education and awareness programs for underserved Latinas living in the San Francisco Bay Area. http://www.latinabca.org
Nueva Vida: The mission of Nueva Vida is to inform, support and empower Latino families whose lives are affected by cancer, and to advocate for and facilitate the timely access to state of the art cancer care, including screening, diagnosis, treatment and high-quality care. http://www.nueva-vida.org
The Coalition of Hispanic Women Against Cancer, Inc.: is organized exclusively for educational purposes, more specifically to reduce the cancer disparity among Hispanic and all other minorities in the community through advocacy, education, referral, increasing awareness and access to services in a culturally sensitive way by overcoming barriers. http://www.chwac.org/
Black Women for Wellness: Very helpful in providing information such as where to get free low cost medical care. Black Women for Wellness PO Box 292516 Los Angeles CA 90029 323 290-5955www.bwwla.com.
Cleaning For a Reason: is an organization that will connect women currently undergoing chemotherapy to participating cleaning services in their area to provide FREE housecleaning – one time per month for up to four months – while they are undergoing treatment. All a woman must do is sign up and have her doctor fax a note confirming the treatment. Cleaning for a Reason will have a participating cleaning service in her area arrange for the service. This organization serves the entire USA with ~600 current partners.. Further information: http://www.cleaningforareason.org.
GENERAL INFORMATION
American Cancer Society: 1599 Clifton Road, NE Atlanta, GA 30329-4251 Phone: 404-320-3333 Toll Free: 800-ACS-2345 TTY: 866-288-4327 http://www.cancer.org
American Cancer Society Cancer Action Network (ACS CAN): Phone: 800-ACS-2345 http://www.acscan.org
Association of Cancer Online Resources: 173 Duane St., Ste. 3A New York, NY 10013-3334 Phone: 212-226-5525 http://www.acor.org
Association of Community Cancer Centers (ACCC): 11600 Nebel St., Ste. 201 Rockville, MD 20852 Phone: 301-984-9496 http://www.accc-cancer.org
Cancer411.org: 15303 Ventura Blvd. Sherman Oaks , CA 91403 Phone: 877-CANCR411 (877-226-2741) http://www.cancer411.org
CancerCare: 275 Seventh Ave. New York, NY 10001 Phone: 212-712-8400 Toll Free: 800-813-HOPE (4673) http://www.cancercare.org
CancerGuide http://www.cancerguide.org
CancerHelp http://www.cancerhelp.8m.com
Cancer Hope Network: Two North Rd., Ste. A Chester, NJ 07930-2308 Phone: 908-879-4039 Toll Free: 877-HOPENET http://www.cancerhopenetwork.org
Cancer Information and Counseling Line (CICL): AMC Cancer Research Center 1600 Pierce St. Denver, CO 80214 Phone: 303-239-3422 Toll Free: 800-525-3777http://www.amc.org/counseling/CICL.pdf
Cancer.Net www.cancer.net
CancerQuest 2017 Rollins Research Center 1510 Clifton Rd., NE Atlanta, GA 30322 http://cancerquest.org
CancerSource: 263 Summer St., 5th Fl. Boston , MA 02210-1506 http://www.cancersourcemd.com/
Gilda’s Club Worldwide: 322 Eighth Ave., Ste. 1402 New York, NY 10001 Phone: 888-GILDA-4-U (888-445-3248) Fax: 917-305-0549 http://www.gildasclub.org
The Intercultural Cancer Council (ICC): 665 Travis, Ste. 322 Houston, TX 77030 Phone: 713-798-4617 Fax: 713-798-6222 http://iccnetwork.org
LIVESTRONG: P.O. Box 161150 Austin, TX 78716-1150 Phone: 512-236-8820 Toll Free: 866-235-7205 Fax: 512-236-8482 http://www.livestrong.org
National Cancer Institute (NCI): Public Inquiries Office Bldg. 31, Rm. 10A31 31 Center Dr., MSC 2580 Bethesda, MD 20892-2580 Phone: 301-435-3848 Toll Free: 800-4-CANCER TTY: 800-332-8615 Fax: 301-402-0894 http://www.cancer.gov
Stand Up 2 Cancer: http://www.standup2cancer.org
CANCER RESEARCH
American Association for Cancer Research (AACR): 615 Chestnut St., 17th Fl. Philadelphia, PA 19106 Phone: 215-440-9300 Toll Free: 866-423-3965http://www.aacr.org
American Institute for Cancer Research (AICR): 1759 R St., NW Washington, DC 20009 Phone: 202-328-7744 Toll Free: 800-843-8114 http://www.aicr.org
Tower Cancer Research Foundation. 1-877-752-2120. www.LACancerInfo.org
Cancer Research Institute: One Exchange Plaza 55 Broadway, Ste. 1802 New York, NY 10006 Phone: 800-99CANCER (800-992-2627)http://www.cancerresearch.org
The Cancer Research Foundation: 135 S. LaSalle Street Suite 2020 Chicago, IL 60690 Phone: 312-630-0055 Fax: 312-630-0075http://www.cancerresearchfdn.org/
Native American Cancer Research (NACR): 3022 S. Nova Rd. Pine, CO 80470-7830 Phone: 303-838-9359 Fax: 303-838-7629 http://natamcancer.org
International Cancer Alliance for Research and Education (ICARE): 4853 Cordell Ave., Ste. 14 Bethesda, MD 20814 Phone: 561-776-6666 Toll Free: 800-ICARE-61 Fax: 561-776-6381 http://www.icare.org
Research Advocacy Network: 309 E. Rand Rd., Ste. 175 Arlington Heights, IL 60004 Phone: 877-276-2187 http://www.researchadvocacy.org
GENE TESTING
http://www.ascocancerfoundation.org/patient/Learning+About+Cancer/Genetics/Genetic+Testing
CLINCAL TRIALS
http://emergingmed.com/ 1.877.601.8601 8:30 AM – 6:00 PM EST (M-F)
http://www.cancer.gov/clinicaltrials
GENERAL SUPPORT
Imerman Angels One on One Cancer Support www.imermanangels.org
Cancer Support Communiy Benjamin Center: West Los Angeles 2716 Ocean Park Blvd # 1040 Santa Monica, CA 90405 (310) 314-2555, Valley/Ventura 530 Hampshire Road, Westlake Village, CA 91361 Telephone: 805.379.4777 Fax: 805.371.6231 http://www.cancersupportcommunitybenjamincenter.org/
CAREGIVER SUPPORT
LA Co. Caregiver Assoc. 1-800-540-4442 www.losangelescrc.org
Information and Resource Specialist: Diana M. Linares, BSW 818-847-9141 x111 dlinares@picf.org
LA Caregiver Resource Center 818-847-9141 ext. 111 Spanish/English Support groups in Granada Hill, CA. Plus classes for caregivers (800) 540-4442 Support for caregivers of older adults w/ chronic condition.
PHYSICAL HEALTH & HEALING
Integrated Cancer Institute (Encino, Van Nuys, and West Hills Locations) http://www.ici.care/
Cricket’s Answer FREE wigs, etc. including lymphedema sleeves (717) 843-7903 Bonnie Julius or (301) 935-4411 Carole Trone http://crickettsanswer.startlogic.com/
National Lymphedema Network (NLN) Comprehensive information on the support, education and treatment. Latham Square 1611 Telegraph Ave., Ste. 111 Oakland, CA 94612 Toll Free: 800-541-3259 Phone: 510-208-3200 http://www.lymphnet.org
CANCER NUTRITION
The Cancer Nutrition Center (310) 826-2127 The Cancer Nutrition Center offers information about cancer and nutrition with links to other nutrition-related web sites. http://www.cancernutrition.com/
COMMUNITY SERVICES
Housing:
Joe’s House Believes that you focus on beating cancer, they’ll find you a place to stay. Joe’s House is a nonprofit organization providing a online nation-wide list of places to stay to assist cancer patients and their families find lodging near treatment centers. www.joeshouse.org
Food Delivery:
Project Angel Food http://www.projectangelfood.org/
323.845.1800 922 Vine Street, Los Angeles, CA 90038-2702
Meals to Heal www.meals-to-heal.com 888-721-1041
Transportation Services:
American Cancer Society (800) 227-2345 may provide free transportation to treatments with advanced arrangements (usually this one is in the form of tokens to take a taxi to treatment).
Airline Tickets:
Air Charity Network http://aircharitynetwork.org/
Corporate Angel Network 866-328-1313 www.corpangelnetwork.org Free flights for cancer patients and their families. Private jets used by corporations that have empty seats, free flights. No financial requirements. One of many advantages is low risk of exposure to contagious illness because just a few people are on plane.
Air Care Alliance 800-296-1217 http://www.aircareall.org/ Referral source for 37 organizations that provide this service.
Angel Flight, Inc. People Flying People in Need 918-749-8992 http://www.angelflight.com/ Angel Flight is a non-profit organization of pilots and other volunteers dedicated to serving the community by arranging free private air transportation for medical patients who cannot afford to utilize normal, commercial transportation. Angel Flight also provides services to blood, organ and tissue banks.
Angel Flight America, Inc. www.airlifeline.org and www.angelflightamerica.org Angel Flight® America (AFA) provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.
Cancer Air Flights http://www.gwccs.org/flights.html Lists a number of organizations that assist cancer survivors and their caregivers with transportation to and from treatments.
Lifeline Pilots 309-697-6865 http://www.lifelinepilots.org/ LifeLine Pilots is a private, non-profit organization that provides people in medical and financial distress with access to free air transportation on small (4-6 seat), private aircraft for health care and other compelling human needs.
Mercy Medical Airlift http://www.mercymedical.org/ (MMA) is a non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation.
Miracle Flights for Kids (800) -359-1711 or (702) 261-0494 http://www.miracleflights.com/ Transporting children to medical treatment since 1985.
National Patient Air Travel http://www.patienttravel.org/ Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available through the Angel Flight America Network. Call 1-800-296-1217. Once NPATH, now also known as www.patienttravel.org.
Northwest Airlines, Kid Cares medical travel program provides air travel to children age 18 and younger who are unable to receive treatment in their home area. Those with financial need have priority. (612-726 4206) http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml
TWA Operation Liftoff http://www.operationliftoff.com/ “Providing special trips to children who are facing life threatening illness.” Free flights, no financial requirements. Operation Liftoff provides air transportation for children with a life threatening illness for a wish trip or treatment trip.
CHILDREN & TEENS
Teen Impact Children’s Hospital 323-361-2121
Teens Living With Cancer: Melissa’s Living Legacy Foundation 245 Citation Dr. Henrietta, NY 14467 Phone: 585-334-0858 Fax: 585-334-0858http://www.teenslivingwithcancer.org
The Ulman Cancer Fund for Young Adults: PMB 505 4725 Dorsey Hall Dr., Ste. A Ellicott City, MD 21042 Phone: 410-964-0202 Toll Free: 888-393-FUND (3863) Fax: 410-964-0402 http://www.ulmanfund.org
Kids Konnected 800-899-2866 www.kidskonnected.org
Crystal Stairs Children’s Health and Wellness program helps with health insurance enrollment or with medical referral, please call 323-299-9295. http://www.crystalstairs.org/
Alliance for Childhood Cancer 1900 Duke St., Ste. 200 Alexandria, VA 22314 Phone: 703-299-1050 Fax: 703-684-8364 http://allianceforchildhoodcancer.org/
American Brain Tumor Association (ABTA) 2720 River Rd. Des Plaines, IL 60018 Phone: 847-827-9910 Toll Free: 800-886-2282 http://www.abta.org
Candlelighters Childhood Cancer Foundation P.O. Box 498 Kensington, MD 20895-0498 Phone: 301-962-3520 Toll Free: 800-366-2223 Fax: 301-962-3521 http://www.acco.org/
Childhood Leukemia Center http://www.patientcenters.com/leukemia
Children’s Brain Tumor Foundation 274 Madison Ave., Ste. 1004 New York, NY 10016 Phone: 212-448-9494 http://www.cbtf.org
Children’s Hospice International (CHI) 1101 King St., Ste. 360 Alexandria, VA 22314 Toll Free: 800-243-4453 Phone: 703-684-0330 http://www.chionline.org
CureSearch National Childhood Cancer Foundation Children’s Oncology Group 4600 East West Highway, #600 Bethesda, MD 20814-3457 Phone: 800-458-NCCF (6223) Fax: 626-447-6359 http://www.curesearch.org
Make-A-Wish Foundation 3550 N Central Ave., Ste. 300 Phoenix, AZ 85012-2127 Phone: 602-279-9474 Toll Free: 800-722-WISH (9474) Fax: 602-279-0855 http://www.wish.org
National Childhood Cancer Foundation P.O. Box 60012 440 E Huntington Dr. Arcadia, CA 91006-6012 Phone: 626-447-1674 Toll Free: 800-458-6223 Fax: 626-447-6359 http://www.nccf.org
National Children’s Cancer Society 1 South Memorial Dr., Ste. 800 St. Louis, MO 63102 Toll Free: 800-532-6459 Phone: 314-241-1600 http://www.nationalchildrenscancersociety.org
Neuroblastoma Children’s Cancer Society P.O. Box 957672 Hoffman Estates, IL 60195 Phone: 847-605-1245 Toll Free: 800-532-5162 Fax: 847-605-0705 http://www.neuroblastomacancer.org
Outlook: Life Beyond Childhood Cancer http://www.outlook-life.org
Starlight Starbright Children’s Foundation 5757 Wilshire Blvd., Ste. M100 Los Angeles, CA 90036 Phone: 310-479-1212 http://www.slsb.org
The Childhood Brain Tumor Foundation 20312 Watkins Meadow Dr. Germantown, MD 20876 Phone: 301-515-2900 Toll Free: 877-217-4166 http://www.childhoodbraintumor.org
The Children’s Cause 1010 Wayne Ave., Ste. 770 Silver Spring, MD 20910 Phone: 301-562-2765 Fax: 301-565-9670 http://www.childrenscause.org
The STARBRIGHT Foundation 1850 Sawtelle Blvd., Ste. 450 Los Angeles, CA 90025 Phone: 310-479-1212 Toll Free: 800-315-2580 Fax: 310-479-1235 http://www.starbright.org
FINANCIAL RESOURCES
Govbenefits.gov 1-800-333-4636 (SSI & Medicaid)
Nat’l Cancer Institute Government-sponsored programs as well as services supported by nonprofit, national organizations are available for people who do not have health insurance and for those who have insurance but still need financial assistance to cover health care costs. Cancer patients and their families should discuss any concerns about health care costs with their doctor, medical social worker, or the business office of their hospital or clinic. https://cissecure.nci.nih.gov/factsheet/FactSheetSearch8_3.aspx
Beckstrand Cancer Foundation Through three important programs – Individual Patient Assistance (IPA), Psychosocial Pediatric Program and BELIEVE –serves patients who are in the midst of cancer treatment and struggling to cope with day-to-day critical survival needs. IPA requires local residence and matches patients to existing clinical programs. www.beckstrand.org/
Breast Cancer Angels http://breastcancerangels.org/our-programs/ FOOD PROGRAM Breast Cancer Angels provides gift cards to the market of the clients’ choice; the dollar amount depends on family size and need (average of $250 per family per month). The current need is $18,000 monthly. Breast Cancer Angels assists with emergency housing costs.
Patient Advocate Foundation Insuring equal access to health care for everyone. 800/532-5274 Also, PAF Co-Pay Relief 866-512-3861 Patient Advocate Foundation, please call 1-800-532-5274 or visit our Web site atwww.patientadvocate.org or for Co-pay Relief information, call 1-866-512-3861 or e-mail CPR@patientadvocate.org.
Talbert Family Foundation For families with kids only. TFF programs are designed for families with short term financial needs caused by a catastrophic illness that impacts the family’s financial stability. Families are accepted into the program on the condition of their willingness to conduct a fundraising campaign. Grants: www.talbertfamilyfoundation.org/pages/mission.html 818-715-0428
The HealthWell Foundation® Committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments. Our vision is to ensure that no patient goes without health care because they cannot afford it.http://healthwellfoundation.org (800) 675-8416
Jewish Free Loan http://www.jfla.org Borrowers must be permanent residents of Southern California. In addition, borrowers must have a current California ID or drivers license, have legal residency status (no VISAs) and are required to live at least 6 months in the area to qualify as a permanent resident. “Free loan” means interest free. There are no fees or charges. You repay the amount you borrowed. Maximum loan amt is $3,000.
The Leukemia & Lymphoma Society Co-Pay Assistance Program for CMLwww.lls.org/copay Voice Toll Free: 877-LLS-COPAY (877) 557-2672 Fax Toll Free: 877-COPAY-FAX (877) 267-2932
CancerCare Assist® http://www.cancercare.org/get_help/assistance/cc_financial.php CancerCare provides limited grants for certain expenses related to treatment. In order to qualify, you need to provide CancerCare with information about your income, savings and expenses, and in some cases provide invoices for the cost of service. Your healthcare professional must also provide information on your cancer. Download their financial assistance application in English or en español. Please be aware that these grants are not for basic living expenses such as rent, mortgages, utility payments or food. If this is the kind of assistance you need, please call or visit your local United Way for information on local resources that can help. Please contact CancerCare at 1-800-813-HOPE (4673) for more information.http://www.cancercare.org/get_help/assistance/cc_financial.php
Rise Above It (RAI) http://www.raibenefit.org/index.html.php?nav=home RAI provides financial assistance and clinical trials information to Adolescent and Young Adult (AYA) cancer patients.
INSURANCE & LEGAL RESOURCES
California Office of the Patient Advocate, www.opa.ca.gov
Foundation for Health Coverage Education, www.coverageforall.org
Partnered for Progress (323) 930-5422
Needing Insurance:
Durable Power of Attorney:
http://www.pamf.org/preventive/PAMF_AdvanceDirective.pdf
California Women’s Law Center/Breast Cancer Legal Clinic The Breast Cancer Legal Project provides assistance to women with breast cancer issues such as employment discrimination, insurance, access to health care, debt collection, housing, public benefits advocacy family law issues, wills and powers of attorney. (323) 951-1041 http://labca.org/info/laresources.php
Cancer Legal Resource Center The Cancer Legal Resource Center is a community-based program providing information and educational outreach on cancer-related issues to people with cancer, cancer survivors, their families and employers. (213) 736-1334 (866) 999-3752http://www.disabilityrightslegalcenter.org/
Ross & Morrison (Cancer Advocacy) (310) 285-0391 pro-bonohttp://www.rossandmorrison.com/community.php
Dept for Healthcare Rights (info about HMOs) California Health Advocates Sponsored by the California Department on Aging, this volunteer program assists with medical billing and will help you compare supplemental and long-term care policies. Legal assistance is also provided. (213) 383-4519
Dept of Managed Healthcare Will review Doctors’ orders to release from the hospital if patient doesn’t feel ready to leave. (888) 466-2219
Patient Advocate Foundation Insuring equal access to health care for everyone. (800) 532-5274
Legal Aid Foundation of LA (323) 801-7991
Leukemia & Lymphoma Society Co-pay Assistance Program (800) 955-4572 or (877) 557-2672
Medical Malpractice Center http://www.malpracticecenter.com/
BRAIN CANCER
American Brain Tumor Association (ABTA) 2720 River Rd. Des Plaines, IL 60018 Phone: (847) 827-9910 Toll Free: (800) 886-2282 http://www.abta.org
Brain Tumor Society (BTS) 124 Watertown St., Ste. 3-H Watertown , MA Phone: 617-924-9997 Toll Free: 800-770-TBTS (8287) Fax: 617-924-9998 http://www.tbts.org
Children’s Brain Tumor Foundation 274 Madison Ave., Ste. 1004 New York, NY 10016 Phone: 212-448-9494http://www.cbtf.org
National Brain Tumor Foundation (NBTF) 22 Battery St., Ste. 612 San Francisco, CA 94111 Phone: 415-834-9970 Toll Free: 800-934-CURE (2873) Fax: 415-834-9980 http://www.braintumor.org
The Brain Tumor Foundation 1350 Avenue of the Americas, Ste. 1200 New York, NY 10019 Phone: 212-265-2401 Fax: 212-489-0203 http://www.braintumorfoundation.org
The Childhood Brain Tumor Foundation 20312 Watkins Meadow Dr. Germantown, MD 20876 Phone: 301-515-2900 Toll Free: 877-217-4166 http://www.childhoodbraintumor.org
BREAST CANCER GENERAL INFO & RESOURCES
American Society of Breast Disease P.O. Box 140186 Dallas, TX 75214 Phone: 214-368-6836 http://www.asbd.org
Breast Cancer Network of Strength 212 W. Van Buren, Ste. 1000 Chicago, IL 60607 Phone: 312-986-8338 Toll Free: 800-221-2141 Spanish: 800-986-9505 Fax: 312-294-8597http://www.networkofstrength.org
BreastCancer.Net http://www.breastcancer.net
Breastcancer.org 111 Forrest Ave., 1R Narberth, PA 19072 http://www.breastcancer.org
California Medical Review, Inc. (now Lumetra) Mammography Campaign One Sansome Street Suite 600 San Francisco, CA 94104-4448 Phone: 415-677-2000 Fax: 415-677-2195http://www.lumetra.com/healthplans/bcs/index.asp
CancerAnswers.org
Community Outreach Pacific Asian Language Services (PALS) PALS offers trained interpreters to limited-English speaking Asian and Pacific Islander clients seeking any spectrum of breast health care. Visit Special Services for Groups or call 213/553-1818.
Encore Plus of the YWCA of the USA Phone: 800-95-EPLUS http://www.ywca.org/
FORCE: Facing Our Risk of Cancer Empowered 16057 Tampa Palms Blvd. W, PMB #373 Tampa , FL 33647 Phone: 954-255-8732 Toll Free: 866-288-RISK (7475) http://www.facingourrisk.org For men and women with a high risk of cancer, particularly BRCA+. facingourrisk.org or 866-288-7475 x717 in Santa Monica
HER2 Support Group Org. 6973 Mimosa Dr. Carlsbad, CA 92009 Phone: 760-602-9178http://www.her2support.org
Inflammatory Breast Cancer http://www.ibcsupport.org
Inflammatory Breast Cancer Research Foundation 321 High School Rd., NE, Ste. D3, #149 Bainbridge Island, WA 98110 Phone: 877-STOP-IBC (877-786-7422) http://www.ibcresearch.org
John W. Nick Foundation, Inc. P.O. Box 4133 Vero Beach, FL 32963 Phone: 772-589-1440http://www.johnwnickfoundation.org
Living Beyond Breast Cancer 10 E. Athens Ave., Ste. 204 Ardmore, PA 19003 Phone: 610-645-4567 Toll Free: 888-753-5222 Fax: 610-645-4573 http://www.lbbc.org
Los Angeles Breast Cancer Alliance www.labca.org 310-453-1046
Mothers Supporting Daughters with Breast Cancer c/o Charmayne Dierker, President 21710 Bayshore Rd. Chestertown, MD 21620-4401 Phone: 410-778-1982 http://www.mothersdaughters.org
National Breast and Cervical Cancer Early Detection Program Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy., NE Atlanta, GA 30341-3717 Toll Free: 800-292-4636 http://www.cdc.gov/cancer/index.htm
National Breast Cancer Coalition (NBCC) 1101 17th St., NW, Ste. 1300 Washington, DC 20036 Phone: 202-296-7477 Toll Free: 800-622-2838 Fax: 202-265-6854 http://www.stopbreastcancer.org
SHARE: Self-help for Women with Breast or Ovarian Cancer 1501 Broadway, Ste. 704a New York, NY 10036 Phone: 212-719-0364 Toll Free: 866-891-2392 http://www.sharecancersupport.org
Sister Breast Cancer Survivor Network 116 ½ W. 84th Place Los Angeles CA 90003 323 759-0200
Sisters Network, Inc. 8787 Woodway Dr., Ste. 4206 Houston, TX 77063 Phone: 713-781-0255 Toll Free: 866-781-1808 Fax: 713-780-8998 http://www.sistersnetworkinc.org
Susan G. Komen for the Cure 5005 LBJ Freeway Ste. 250 Dallas, TX 75244 Phone: 972-855-1600 Toll Free: 800-I’M-AWARE (800-462-9273) http://www.komen.org
Young Survival Coalition 61 Broadway, Ste. 2235 New York, NY 10006 Toll Free: 1-800-972-1011 Phone: 646-257-3000 http://www.youngsurvival.org
NECK & ORAL CANCER
Support for People with Oral, Head, and Neck Cancer (SPOHNC) P.O. Box 53 Locust Valley, NY 11560-0053 Phone: 516-759-5333 Toll Free: 800-377-0928 Fax: 516-671-8794 http://www.spohnc.org
The Oral Cancer Foundation 3419 Via Lido, #205 Newport Beach, CA 92663 Phone: 949-646-8000www.oralcancerfoundation.org
LEUKEMIA, LYMPHOMA & MYELOMA
American Society for Blood and Marrow Transplantation 85 W Algonquin Rd., Ste. 550 Arlington Heights, IL 60005 Phone: 847-427-0224 Fax: 847-427-9656 http://www.asbmt.org
Blood and Marrow Transplant Information Network 2310 Skokie Valley Rd., Ste. 104 Highland Park, IL 60035 Phone: 847-433-3313 Toll Free: 888-597-7674 Fax: 847-433-4599 http://bmtinfonet.org/
Childhood Leukemia Center http://www.patientcenters.com/leukemia
Leukemia Research Foundation 2700 Patriot Blvd., Ste. 100 Glenview, IL 60026-8021 Phone: 847-424-0600 Fax: 847-424-0606 http://www.leukemia-research.org
National Bone Marrow Transplant Link 20411 West 12 Mile Rd., Ste. 108 Southfield, MI 48076 Phone: 248-358-1886 Toll Free: 800-LINK-BMT (800-546-5268) Fax: 248-358-1889 http://www.nbmtlink.org
National Marrow Donor Program 3001 Broadway St., NE, Ste. 100 Minneapolis, MN 55413-1753 Phone: 800-MARROW2 (800-627-7692) Pat. Adv.: 888-999-6743 http://www.marrow.org
The Leukemia and Lymphoma Society 1311 Mamaroneck Ave. White Plains, NY 10605 Phone: 914-949-5213 Toll Free: 800-955-4LSA (4572) http://www.lls.org
The Myelodysplastic Syndromes Foundation P.O. Box 353 36 Front Street Crosswicks, NJ 08515 Phone: 800-MDS-0839 (800-637-0839) Fax: 609-298-0590 http://www.mds-foundation.org
Patients Against Lymphoma 3774 Buckwampum Rd. Reigelsville, PA 18077 Phone: 610-346-8419http://www.lymphomation.org
International Myeloma Foundation 12650 Riverside Dr., Ste. 206 North Hollywood, CA 91607 Phone: 818-487-7455 Toll Free: 800-452-2873 Fax: 818-487-7454 http://www.myeloma.org
Multiple Myeloma Research Foundation (MMRF) 383 Main Ave., 5th floor Norwalk, CT 06841 Phone: 203-229-0464 http://www.multiplemyeloma.org
LUNG CANCER
American Lung Association 61 Broadway, 6th Fl. New York, NY 10006 Toll Free: 800-586-4872 Phone: 212-315-8700 http://www.lungusa.org
It’s Time to Focus on Lung Cancer/Lungcancer.org Toll Free: 877-646-5864 http://www.lungcancer.org
Lung Cancer Alliance 1747 Pennsylvania Ave. NW, 11th Fl. Washington, DC 20006 Toll Free: 800-298-2436 Phone: 202-463-2080 http://www.lungcanceralliance.org
Lung Cancer Online http://www.lungcanceronline.org
National Lung Cancer Partnership 222 N. Midvale Blvd., Ste. 6 Madison, WI 53705 Phone: 608-233-7905http://www.nationallungcancerpartnership.org
Mesothelioma Group www.mesotheliomagroup.com/
Mesothelioma + Asbestos Awareness Center http://www.maacenter.org/
Mesotheliomia Resource Online http://www.mesotheliomasymptoms.com/
Mesotheliomia Help http://www.mesotheliomahelp.org
Mesotheliomia Help Now http://www.mesotheliomahelpnow.com
OVARIAN CANCER
Conversations! P.O. Box 7948 Amarillo, TX 79114-7948 Phone: 806-355-2565 Fax: 806-467-9757 http://www.ovarian-news.org
FORCE: Facing Our Risk of Cancer Empowered 16057 Tampa Palms Blvd. W, PMB #373 Tampa , FL 33647 Phone: 954-255-8732 Toll Free: 866-288-RISK (7475) http://www.facingourrisk.org
Gilda Radner Familial Ovarian Cancer Registry Roswell Park Cancer Institute Elm and Carlton Sts. Buffalo, NY 14263-0001 Phone: 800-OVARIAN (800-682-7426) http://www.ovariancancer.com
Gynecologic Cancer Foundation (GCF) 230 W Monroe, Ste. 2528 Chicago, IL 60606 Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org
National Ovarian Cancer Coalition (NOCC) 500 NE Spanish River Blvd., Ste. 8 Boca Raton, FL 33431 Toll Free: 888-682-7426 Phone: 561-393-0005 http://www.ovarian.org
Ovarian Cancer National Alliance 910 17th St., NW, Ste. 1190 Washington, DC 20006 Toll Free: 866-399-6262 Phone: 202-331-1332 http://www.ovariancancer.org
SHARE: Self-help for Women with Breast or Ovarian Cancer 1501 Broadway, Ste. 704a New York, NY 10036 Phone: 212-719-0364 Toll Free: 866-891-2392 http://www.sharecancersupport.org
PANCREATIC CANCER
Hirshberg Foundation for Pancreatic Cancer Research 2990 S. Sepulveda Blvd., Ste. 300C Los Angeles, CA 90064 Phone: 310-473-5121 http://www.pancreatic.org
Lustgarten Foundation for Pancreatic Cancer Research 1111 Stewart Ave. Bethpage, NY 11714 Phone: 516-803-2304 Toll Free: 866-789-1000 Fax: 516-803-2303 http://www.lustgarten.org
Pancreatic Cancer Action Network (PanCAN) 2141 Rosecrans Ave., Ste. 7000 El Segundo, CA 90245 Phone: 310-725-0025 Toll Free: 877-2-PANCAN (877-272-6226) Fax: 310-725-0029 http://www.pancan.org
Pancreatica.org 149 Bonifacio Place Monterey, CA 93940 Phone: 831-658-0600 http://www.pancreatica.org
SKIN CANCER
American Academy of Dermatology P.O. Box 4014 Schaumburg, IL 60168-4014 Phone: 847-330-0230 Toll Free: 888-462-3376 (DERM) Fax: 847-330-0050 http://www.skincarephysicians.com/skincancernet/
Melanoma Center http://www.melanomacenter.org
Melanoma International Foundation 250 Mapleflower Rd. Glenmoore, PA 19343 Toll Free: 866-463-6663 Phone: 610-942-3432 www.melanomaintl.org
Melanoma Patients’ Information Page The Pattersons P.O. Box 389 Cloverdale, CA 95425 http://www.mpip.org
Melanoma Research, Inc. (The Billy Foundation) 26203 Production Ave., 12-A/Zebra Ste. Haywood, CA 94545 Phone: 510-264-9078 Toll Free: 888-88-BILLY (888-882-4559) Fax: 510-264-9079http://www.bfmelanoma.com
National Council on Skin Cancer Prevention c/o Michelle Baker 5800 Wilson Ln. Bethesda, MD 20817http://www.skincancerprevention.org
SunWise Program U.S. Environmental Protection Agency 1200 Pennsylvania Ave., NW (6205J) Washington, DC 20460 http://www.epa.gov/sunwise
The Skin Cancer Foundation 245 Fifth Ave., Ste. 1403 New York, NY 10016 Phone: 212-725-5176 Toll Free: 800-SKIN-490 (800-754-6490) Fax: 212-725-5751 http://www.skincancer.org
National Council on Skin Cancer Prevention c/o Michelle Baker 5800 Wilson Ln. Bethesda, MD 20817http://www.skincancerprevention.org
Adenoid Cystic Carcinoma Organization International P.O. Box 15482 San Diego, CA 92175 http://www.accoi.org
Adrenocortical Carcinoma The University of Texas M.D. Anderson Cancer Center Development Office P.O. Box 4486 TX www.mdanderson.org
OTHER CANCERS
Bladder Cancer:
American Urological Association 1000 Corporate Blvd. Linthicum, MD 21090 Toll Free: 866-746-4282 Phone: 410-689-3700 http://www.UrologyHealth.org
Bladder Cancer Advocacy Network 4813 St. Elmo Ave. Bethesda, MD 20814 Phone: 301-215-9099http://www.bcan.org
Carcinoid Tumor:
The Carcinoid Cancer Foundation, Inc. 333 Mamaroneck Ave., #492 White Plains, NY 10605 Phone: 914-683-1001 Toll Free: 888-722-3132 Fax: 914-683-0183 http://www.carcinoid.org
Cervical Cancer:
Encore Plus of the YWCA of the USA Phone: 800-95-EPLUS http://www.ywca.org/
Gynecologic Cancer Foundation (GCF) 230 W Monroe, Ste. 2528 Chicago, IL 60606 Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org
National Breast and Cervical Cancer Early Detection Program Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy., NE Atlanta, GA 30341-3717 Toll Free: 800-292-4636 http://www.cdc.gov/cancer/index.htm
National Cervical Cancer Coalition (NCCC) 7247 Hayvenhurst Ave., Ste. A-7 Van Nuys, CA 91406 Toll Free: 800-685-5531 Phone: 818-909-3849 http://www.nccc-online.org
Colorectal Cancer:
Colon Cancer Alliance 5411 N. University Dr., Ste. 202 Coral Springs, FL 33067 Toll Free: 877-422-2030 Phone: 212-627-7457 http://www.ccalliance.org
Colorectal Cancer Association of Canada 180 Bloor Street West Suite 904 Toronto, Ontario, M5S 2V6 Phone: 888-318-9442 Fax: 416-920-3004 http://www.colorectal-cancer.ca/
Colorectal Cancer Coalition (C3) 1225 King St., 2nd Fl. Alexandria, VA 22314 Toll Free: 877-427-2111 Phone: 703-548-1225 http://www.fightcolorectalcancer.org
The Susan Cohan Kasdas Colon Cancer Foundation 201 North Charles Street, Suite 2404 Baltimore, MD 21201 Phone: (410) 244-1778 http://www.coloncancerfoundation.org
Eye Cancer
The Eye Cancer Network Eye Care Foundation 115 E 61st St. New York, NY 10021 Phone: 212-832-8170http://www.eyecancer.com
Gastrointestinal Stromal Tumor (GIST):
GIST Support International 12 Bomaca Dr. Doylestown, PA 18901 Phone: 215-340-9374 Fax: 215-340-1630http://www.gistsupport.org
The Life Raft Group (LRG) 40 Galesi Dr., Ste. 19 Wayne, NJ 07470 Phone: 973-837-9092 Fax: 973-837-9095http://www.liferaftgroup.org
Kidney Cancer
Action to Cure Kidney Cancer 150 West 75th St., Ste. 246 New York, NY 10023 Phone: 212-615-6404http://www.ackc.org
American Urological Association 1000 Corporate Blvd. Linthicum, MD 21090 Toll Free: 866-746-4282 Phone: 410-689-3700 http://www.UrologyHealth.org
Kidney Cancer Association 1234 Sherman Ave., Ste. 203 Evanston, IL 60202 Toll Free: 800-850-9132 Phone: 847-332-1051 http://www.kidneycancer.org
VHL Family Alliance 2001 Beacon St., Ste. 208 Boston, MA 02135-7787 Toll Free: 800-767-4845 Phone: 617-277-5667 http://www.vhl.org
Liver Cancer:
LiverTumor.org http://www.livertumor.org
Mesothelioma:
Mesothelioma Applied Research Foundation 1609 Garden St. Santa Barbara, CA 93101 Phone: 805-560-8942 Fax: 805-560-8962 http://www.marf.org
Mesothelioma Guide http://www.mesotheliomaguide.com/
Mesothelioma Fund www.mesotheliomafund.com
Mesothelioma + Asbestos Awareness Center http://www.maacenter.org/
Mesothelioma Group www.mesotheliomagroup.com/
Mesotheliomia Resource Online http://www.mesotheliomasymptoms.com/
Mesotheliomia Help http://www.mesotheliomahelp.org
Mesotheliomia Help Now http://www.mesotheliomahelpnow.com
Rare Cancers:
National Organization for Rare Disorders (NORD) 55 Kenosia Ave. P.O. Box 1968 Danbury, CT 06813-1968 Toll Free: 800-999-6673 Phone: 203-744-0100 http://www.rarediseases.org
Rare Cancer Alliance 649 N. Pacana Way Green Valley, AZ 85614 http://www.rare-cancer.org
Sarcoma:
Sarcoma Alliance 775 E Blithedale, #334 Mill Valley, CA 94941 Phone: 415-381-7236 Fax: 415-381-7235 http://www.sarcomaalliance.org
Sarcoma Foundation of America P.O. Box 458 Damascus, MD 20872 Phone: 301-253-8687http://www.curesarcoma.org
Thyroid Cancer:
ThyCa: Thyroid Cancer Survivors’ Association, Inc. P.O. Box 1545 New York, NY 10159-1545 Phone: 877-588-7904 Fax: 630-604-6078 http://www.thyca.org
Uterine/Vaginal Cancer:
Gynecologic Cancer Foundation (GCF) 230 W Monroe, Ste. 2528 Chicago, IL 60606 Phone: 312-578-1439 Toll Free: 800-444-4441 Fax: 312-578-9769 http://www.thegcf.org